From its inception in 1983, the Charcot-Marie-Tooth Association (CMTA) has followed a twofold mission: supporting research on the causes and possible cures for Charcot-Marie-Tooth disease (CMT) and focusing on patient education and support. From an organization of only a few hundred members, the association has grown to be known throughout the medical world, serving over 20,000 persons who make inquiries through the Internet, by phone calls and with letters asking for information and publications. CMT is a group of inherited disorders that affect the peripheral nerves, which are the nerves outside the brain and spinal cord. CMT affects about 2.8 million people worldwide and 150,000 people in the U.S., of all races and ethnic groups.
The chances to identify a treatment for CMT 1A, the most common form of the disease, have never been greater than at this moment. Recognizing this critical moment, the CEO will have the opportunity to elevate the profile of CMTA into new markets and expand its stature through broader community engagement and support education and medical research.
We seek an accomplished leader with demonstrated success in organizational leadership, strong development experience and solid business acumen gained from his or her professional career. An understanding of the trends, opportunities and challenges inherent in the fields of medical research and drug development is preferred.
The ideal candidate will be able to demonstrate fundraising success through active engagement and solicitation of major individual donors, foundations and corporations. Working with board members in creating appropriate avenues for their participation in fundraising is highly preferred. A passion for the advancement of disease specific research and support, at minimum, is required. Specific experience with CMT is ideal but not required.
The successful candidate must also be suited to be a confident public face of the organization, whose interpersonal skills demonstrate an ability to work in harmony at all levels (internally and externally). Experience helping an organization build a broad audience through a strong social media presence is valued. An undergraduate degree from a college or university is required; a graduate degree is preferred.
Applications for the position are being received exclusively by Kittleman & Associates, LLC. Please submit a letter of introduction and a current resume at http://www.kittlemansearch.com/charcotmarietooth-association/. For more information about Charcot-Marie-Tooth Association, visit www.cmtausa.org.